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Rare Disease Workshop

Building on the 2024 PPP Rare Diseases series, we will organise a discussion Workshop to discuss key issues around improving the lives of patients with rare diseases in the UK.

Convening leading experts in Rare Diseases including researchers, clinicians, policymakers, regulators, industry organisations, and patient groups, we will:

  • Discuss how to implement key recommendations from the 2024 PPP Rare Diseases report, aligned to the UK Rare Disease Framework
  • Assess the priorities for the new Government, to keep rare disease diagnosis and treatment as a key priority for the Health Secretary
  • Conduct a gap analysis and build a robust Rare Diseases roadmap for the next 5 years.


Partnership opportunities:

if you work for a commercial organisation and want to find out more about how you can be involved in the Global Genomics and Rare Diseases Conference please contact Dr Chris Rice at

Find out more about the benefits from being a PPP Partner. 

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Nov 20 2024


9:00 am - 5:30 pm


This event is free for the Public Sector and third sector organisations, and there are a limited amount of Private Sector Tickets (suppliers) available at £499.99 per ticket


One Great George Street, London
London, SW1P 3AA
Register Your Interest
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