Patients with a rare, genetic or undiagnosed condition are facing unprecedented challenges as a result of the ongoing pandemic. The aim of this paper is to explore new ways of working, assess the opportunities to develop an implementation plan for the new Framework and outline opportunities to increase patient voice within improving care and support.

From tracking the spread of Covid-19 through to understanding the very nature of what makes us human, genomics impacts daily life in many different ways. The promise of personalised medicine to target the precise problem to protecting critically endangered species, this relatively young branch of science has already impacted how we live and undoubtedly has the power to dramatically improve society. Public Policy Projects has been working with Sir John Chisholm, former Chair of Genomics England, and is currently producing a State of the Nation report into Genomics. As part of the conversation, we will use this session to expand insight and develop the narrative.